Authentic Happiness Archive

8

Standing Up To MS

IMG_1133

“Either I will find a way, or I will make one.” ~ Philip Sidney

I have been bound to my wheelchair for two years. I can no longer safely use a walker or cane. I am also not strong enough to “wall walk” anymore. Therefore, the chair has become an extension of my body, which I rely on 100% to provide me with mobility.

I realize using a wheelchair is not a horrible experience or the end of the world. It’s actually a really good thing. It enables me to get around and be more independent than I would be without it.

But I must admit, since I am always sitting, some days I just want to stand up for a little while. Just to give my backside some relief from the constant pressure. Usually, I only get to stand up when I am transferring to another chair or too lay down. But during a recent visit to my physical therapist, I was introduced to a walking sling.

IMG_1132

The sling helps lift me from a seated to a standing position. It provides upper body support and gives me enough freedom of movement to engage in exercises and physical therapy. When I first saw it, I didn’t believe it would actually help me. But it does. My core feels stronger.

When I’m in the sling, I can stand for 20 minutes. Hopefully, as I use it more, I can extend my time even further. I am usually so tired after my session I have to take a nap.

Multiple Sclerosis has taken away so many of my abilities. With the walking sling, I get a chance to stand up to MS. And in my own way, give the disease the finger.

IMG_1134

14

My Own Pace

MadeStrong

“In three words I can sum up everything I’ve learned about life: it goes on.” – Robert Frost

My body seems to find a new disaster every week, so why should this instance be any different. I just know it’s going to be one of those days.

I’m weak. I’m tired. I’m frustrated.

It’s like the odds are stacked against me. My life is starting to feel like a game and I keep getting sent back to start.

The world can move very quickly. Because of that tempo, I find myself being absent-minded for more times than I would like to admit. I see everyone moving at the speed of light, while I’m slowing down. I get lost during basic conversations. My memory has begun to leave me. I’m not able to construct whole ideas. My thoughts are choppy images and concepts that I try to piece together. My reasoning is impracticable as I struggle to think of the words to use in simple everyday situations. I am constantly apologizing and asking people to please forgive me for my lack of attention to detail.

I’ve become detached from everything because my mind is focused on more pressing efforts. Like trying not to fall as I attempt to go into the next room or remembering why I was even going into that room.

Between texting, phone calls and the Internet, everyone I know is always “plugged in”. They are constantly moving. I’m starting to realize, I have to live at my own speed. I can’t keep up with everyone else nor should I have too.

Once I learn to give up what I want, for how it is, I will be in a much more satisfying position. Then I’ll be able to experience the sweetness, not just the bitterness of life. And that can only happen when I start living at my own pace.

24

Sunshine And Rainbows

Rainbow_006

“But better to get hurt by the truth than comforted with a lie.” ― Khaled Hosseini

Yesterday, after a doctor’s appointment, I got in my car and the radio was playing “Happy” by Pharrell Williams. I really like that song. Hearing it makes me feel so good.

The next song to play was “Rolling In The Deep” by Adele. I’m married but I can still relate to its “lost love” inference.

The melancholy message of “Rolling In The Deep” is totally opposite from the “Happy” song. Nevertheless, I love them both.

I see my blog as comparable to that radio station’s sequential music programming. Consequently, sometimes it’s happy and sometimes it’s sad.

Recently, I received a few comments and emails asking me why my posts are so negative. For those people that asked, I’ve decided to answer them here.

I didn’t realize so many of my posts were perceived as negative. I went back and looked and from my count most aren’t negative. They just reflect my life. I write about my journey living with MS. In doing so, I chronicle my experiences and feelings. And just like that radio station’s playlist, sometimes I’m up and sometimes I’m down.

Unfortunately, my life is not a Hallmark card. It’s not always sunshine and rainbows. If I pretended it was, this blog would be full of lies. I promised myself that my writings will only tell the truth and sometimes that truth is ugly. So if I can’t always see the bright side of living with a chronic debilitating disease, please forgive me.

I am just like everyone else, I have my good days and I have my bad days. And I’m happy to say that my good days out number my bad.

10

The Power Of The Chair

photo-3

“Never worry about numbers. Help one person at a time, and always start with the person nearest you.” ~Mother Teresa

I own two power chairs. One is portable and the other is heavy-duty. Due to limited space in my home, the heavy-duty chair has been stored at my parent’s house. I never use it and it just sits in their dining room taking up space. My parents didn’t mind it staying there, but it bothered me. So last week I decided it has been at my parent’s house long enough and it was time to sell it.

So, what did I do? I took some pictures of it and tried to sale it on Facebook. I thought it was a good idea, but apparently…no one else did. Not one call.

Plan B was to give it away. I wish I had done that from the start.

I connected with my local MS Society and they gave me some leads of people who were in need. After a few days, I was able to connect with a fellow MSer who needed a power chair.

I recruited my dad to handle the specifics and the actual transfer of the chair. He’s good with that kind of stuff.

The man resides roughly two hours from my parent’s home, but was happy to make the trip. He was so appreciative.

Who knew how rewarding helping someone would be.

16

Living Cliché

nicolegreen.jpg

“We have to dare to be ourselves, however frightening or strange that
self may prove to be.”
– Mary Sarton

I wish I had a boring life.
I would be a mom with two kids and a stay at home wife.

I’d watch TV half the day.
Then shop the other time away.

I’d have lunch with friends.
Then, the next day, meet them again.

Go dancing on weekends and stay up late.
Every night, dinner with my husband is a usual date.

No medicine to ingest. No shots to inject.
I can go all day, no need for rest.

No doctors to see. No nurses around.
I’m always happy, you never see me frown.

I wouldn’t have to explain why I’m in a wheelchair, because there would be none there.

I would go to the movies and watch it from beginning to end.
I would run at the park with all my old and new friends.

I would sleep all day by choice.
And when I spoke, everyone would respect my voice.

No more smiling out of fear.
I’m the best at everything, the envy of all my peers.

My husband would be my husband, not my caretaker or nurse.
I would love that the most, because that part hurts the worst.

Am I wrong for wanting to be like everyone else?
I’m sad that I feel this way, but I really wish my life were a cliché.

13

Therapeutic Horseback Riding

I am back at the farm for another season of therapeutic horseback riding.

DCIM100GOPRO

IMG_0628

I ride until August, then we take a couple of months off because of the heat.

IMG_0811

IMG_0936

It cost $25 and I go once a week.

I really love it and recommend it to everyone.

IMG_0943

IMG_0626

Meeting my new horse. (Video)

33

One Day At A Time

ID-100169302

“Depression is the inability to construct a future.” – Rollo May

Last month was a rough one for me. Physically, I was about the same. Emotionally, I was a wreck.

I was basically doing all the things I should not do. That includes, constantly thinking of activities I can no longer participate in. The more I thought, the more I cried. At first it was behind my husband’s back. Then it was right in front of him. I couldn’t control my emotions. I couldn’t hide the anguish any longer. I began to believe that MS was taking over my life. The pain was ringing in my head non-stop.

I consider this a personal low. I’m not proud of my behavior. I should have known something was up when I lost interest in the pastimes that keep me going and motivated.

But finally, I took a real look at myself. I focused on what was happening to me and I saw a depressed person.

How could I miss this? It’s simple Psych 101.

Thankfully, my husband suggested I visit my psychiatrists. So the next day I did. He increased one of my medications, but I still have some personal work to do.

The social worker I see, suggested I find something to keep me busy. I remembered that I already have that here with you guys. So I’ve come full circle, running with open arms, back to my online family. I’m right back where I started, but now I’m healthier and happier.

And I’m taking it, one day at a time.