Physical therapy Archive

47

Horse-N-Around

If u want to ride...

The reason for my outbursts of relatively gloomy posts is because I just can’t seem to get a handle on what’s happening to this MS body. I just want some sort of reprieve. Now, I say this fully aware that things could always be worse. I am learning from your comments and my readings that the essence of who I am is still here. It’s perhaps why I continue to blog through this onslaught of “new normals”.

I just don’t know of any of my MS friends who are continuing to encounter decline. Or do I? Please let me know because I’m feeling alone on this one.

One good thing is that I recently started horseback riding. I began the process of registering a while back. There was quite a bit of paper work involved. I refer to it as legal mumbo jumbo. But once I got past that I was on my way to the horse farm.

Basically, the type of hippo-therapy I am doing mimics the action of actual walking. It works my core tremendously and also the muscles used for walking. I’ve been riding for three weeks. I go once a week for 45 minutes. I had to work up to 45 minutes of course, at first lasting for only 20 minutes. Since starting I find getting up out of the bed easier, so I think I may be experiencing the benefits already.

Horse in around

Though, I may be on this slippery slope, it’s so important who I surround myself with. I try to associate with supportive folks that love and help me in all my endeavors. I mean riding horses with spastic legs, minimal core strength and slight cognitive impairment is pretty risky business.

But listen, if you tell me this may move me closer to walking with even a walker then…SADDLE ME UP!

By the way they call it therapeutic horseback riding and it may be covered by your insurance if you get a prescription from your doctor. So far I recommend it. I guess Ann Romney was on to something.

I takes some doing for me to get o

31

Preview Of Tomorrow

My PT (physical therapist) gave me my dismissal notice today! Which for normal people would be no big deal but for dramatic Dora over here they were harsh words to bear. Apparently, there have been some changes to Medicare. There is now a cap to the number of visits I can have. I’ve mentioned before how much I enjoy physical therapy. So this hit me hard. My word, there is an entire category dedicated to physical therapy on this website! I’m really about to have a little breakdown.

Well we decided together that August 15th would be my last day. My pride wouldn’t let me cry in front of my therapist, but I sure felt like sobbing. It felt like a boyfriend was dumping me. I guess I’ve grown fond of my time there. I mean I consider it an outing. I buy cute clothes just to go there. Don’t get me wrong I generally get out a bit more than some of my fellow MSers, so I really shouldn’t complain. Plus, this just means I have time to return to water aerobics.

I guess I got kind of attached to the friendly people at PT. But as we know change is always just around the corner. To be honest, therapy was beginning to get a little harder for me. It was especially difficult to see how I wasn’t improving. For example, things I could do in the beginning of therapy I can no longer do, like walk with a cane. For goodness sake, I can barely use my trusty walker. Yep, it’s mostly my scooter these days. Quite frankly, that kind of scares me. At 37 years-old, it makes me wonder, “What will my 40′s look like?”

But then again I guess even abled-bodied folk wonder about things of this sort as well. Nobody knows what the future may bring. There’s really not much I can do about it anyway. Plus, all of my spiritual/health gurus say worrying about tomorrow doesn’t help.

But damn, can I at least get a little preview?

36

My Greatest Goal

This too shall pass. I know and believe this always. Still I must cautiously scream it because recently, I’ve been feeling pretty stable in this normal of mine. As a matter of fact it resembles the old me I know and love. Now I haven’t gotten any miracle drugs or anything I’m just taking my regular meds including my newest prescription of Amprya. Oh and at physical therapy they’ve started putting me on this Functional Electrical Stimulation (FES) device. It basically delivers impulses directly to the muscles bypassing my weary nerves. This assists my legs allowing me to do things I can’t do on my own. My heart accelerates and I even get a bit winded as if I’m exercising. Initially, I was using it while riding the associated bike, they later figured out a way to use it while I stood and held on to something sturdy. I would lift my leg as far as I could and the pulses to my muscles would do the rest. Does that make sense? Well, afterwards I can do movement I couldn’t before albeit slow and deliberately.

Not to belabor the point, but it works similar to the Bioness. You remember the device my insurance company won’t cover.

Lately I’m using my walker more inside the house. No more crawling. Maybe all these things are coming together to keep me in good spirits. And that’s really the endpoint for me. I may look handicapped but I don’t have to act like it. Like I’ve said time and time again, if I let M.S. take my spirit then I’m losing the battle.

Thank goodness I’m not. Losing… that is. I think I’ll just keep riding this wave.

Folks, this is what works for me. My greatest goal is help you find what works for you.

I’ll leave with a quote I just stumbled upon and thought it would was befitting for this post.

“You have a choice. You can live in the No of your life or you can live in the Yes. Look at what is flowing, working, moving. Being in that energy will beget more positive experiences.” – Unknown.

43

Should Be Enough


“If we believe we need to create massive change in order to experience joy, we will inevitably feel a sense of restlessness.”- Lori Deschene

I have physical therapy once a week. There is always a variety of patients represented at different stages of their disease processes. Including those worse off than me. Today I found myself slightly down. Which is unusual because going to physical therapy is the highlight of my week. But as my therapist was assessing me for the new device I mentioned in a previous post, I got a chance to see my progress or lack there of in treatment. I felt a bit defeated because simple walking seemed like a distant dream. Just out of reach yet so far away. It occurred to me in that instant that I’m never gonna be like I was. I’m never gonna walk, I thought to myself.

Immediately I was filled with shame. Because right there, in my midst, were women and men that would love to trade places with me. I’m not paralyzed. My vision is functional. I have full use of both my arms and hands. I have a dynamite support system. This should be enough. I guess sometimes its not. I selfishly want more.


We always want what we don’t have. Never stopping to appreciate our blessings. I’m suppose to hear from my insurance company about that new technology (the Bioness) soon. Maybe too I’m just nervous it won’t live up to my dreams or my insurance company won’t cover it.

MS is suffocating me. I in turn lash out at those around me. I’m noticing that when I get tired my good leg starts dragging too! When will this whirlwind stop? But what I need to appreciate is that even if I could walk that probably won’t be the answer to all my needs. There’s no quick fix for me.

But boy do I hope this new device will at least patch me up!

59

I’m So Excited

I’m so excited!!!

I recently went through a free trial run of a technology that could help me with walking! Albeit, at this point it’s gonna have to be walking with a walker. I have less balance and stamina then I’ve had in the past. These days though walking around my apartment would be welcomed, so boy am I hopeful! Some would tell me to “calm down”(I hear that a lot more than I would like).

I know it’s risky to bet all my chips on black. I’ve been doing it for years. One of two things happen. Either I get what I want or I end up sobbing in the bathroom. The latter seeming to be far too common.

Paying for this latest treatment seems to be the question now. Insurance or Medicare being the obvious answer, but I heard Medicare doesn’t cover it and my other insurance already denied the claim last year. It’s that I finally got a chance to actually try it out. I just need to work on my balance issues. I wonder if physical therapy can address that? I guess first I need to concentrate on one thing at a time.

You see I always stumble on these things that I think will be absolutely life changing. The answer to all my problems. I get so amped up. So ready to dive in full force. I’ve been like this even before Multiple Sclerosis was in the picture. But at least I get it honestly from my father. Even my sister has it too!

The product representative said the MS Society offers grants to help pay for this walk technology. Before I apply for aid I need to get a prescription from my doctor and ask his opinion on the device.

Meanwhile, please forgive me if I seem anxious. It’s because, I’m so excited!!!

27

Scootin’ Around

Since I’ve gotten Thelma, my scooter, it has definitely brought about a renewed feeling of independence. Yet, another thing I am very grateful for. My new concern is my legs seem a little weaker. Thank goodness I’m going to physical therapy Wednesday. The therapist will be able to evaluate me. Although, I wasn’t moving that great with my walker in the first place. That’s why I got the scooter!

You see during my hiatus from physical therapy I think I might have been over doing it at the local wellness based gym. I feel so comfortable and at ease there. It is located next to a retirement community. When I go in the morning the gym is filled with older people who are moving at my pace. I see the different machines and get excited. I try as many as I can and then, in less than an hour unfortunately, I’m exhausted for the week! No kidding! I’ve got to find a way to incorporate physical activity into my lifestyle or I will just go crazy. It’s hard because while I’m physically doing the exercise I feel fine. Tricky, right? The effects usually hit the hardest the next day.

Also, I’m currently taking Gilenya but I’m not sure of its efficacy. Don’t worry I’m not going to switch to something else this soon, but dang it I thought I would see more improvement by this point. Okay, it hasn’t even been six months. I know I’m being my usual inpatient self. Somethings just don’t change as easily as we would hope!

At first I was nervous about getting a scooter but now I LOVE riding it! It disassembles simply and can fit right into our sports utility. My biggest worries are keeping the wheels clean so as to not dirty our carpet! Now you can’t beat that.

Needless to say when I do return to therapy I’ll have Tommy, my husband, push me in my wheelchair. My physical therapist didn’t really want me to get a scooter in the first place!

My mama always said I was stubborn!