Welcome to

My New Normals

Home / intro / Now what?

Now what?

It takes me longer to untangle the headphones, than actually workout!!

Now, that I’m content here in our apartment home with my husband.  I can’t help but to wonder: Now what?

For a longtime I’ve been satisfied with viewing my rehabilitory excursions as “work.” In all sense of the word, it very much is. After all, after I finish my 10-minute elliptical workout I am nearly done for the day! In fact, my husband escorts me to and from the gym in my handy wheelchair!

He wheels me there to conserve my energy for the gym. That makes sense… I guess. Then afterwards, I lower my head in tears and succumb to the dreaded wheelchair escort back to the apartment. Now, that’s what usually saddens me. How can I explain it? Hmmm I suppose it feels like the ultimate reality check the disciples faced after the Transfiguration on the mountaintop in Luke 9: 28-36.  For 10 minutes I actually use my iPod and headphones!

It takes me longer to untangle the headphones, than actually workout!!

Earlier, I convinced him I was ready to do the elliptical and afterwards use my forearm crutches to make it back to the apartment. He naively agreed. Needless to say after the workout I could only make a few steps on my crutches before I slide down to the floor! As I quietly sat on the floor, Tom ran back to the apartment, got my wheelchair and rescued me! I had never been so happy to see that darn wheelchair! So now he wheels me to and from with no resistance from me. Only, a snotty sideways glare. It was the very best I could muster.

I think my next struggle is going to be this new way of treating multiple sclerosis. It’s completely contrary to how we have historically been treating MS. Chronic cerebro-spinal venous insufficiency (CCSVI). It’s controversial and not covered by insurance. But then again, why would it be? It’s brand new. Well, my cohorts assert. It should be.  It works and “I” don’t have time to wait!!!!!

1. The rolling walker with a basket!

2. The wheelchair.

3.The Forearm crutches that afford a little independence.

2 thoughts on “Now what?”
  1. shaydee5 24 June, 2011 on 5:13 PM Reply

    Hi. I love your website. I wish I had the time to update my blog like yours. Just FYI, I had the CCSVI treatment in April. I’m semi-happy with it. My left leg doesn’t lift anymore than it did before, but my head is clearer and my balance is better. If my darn knees weren’t so bad…. Anyway, it is covered by insurance, as long as the people you go to know which diagnosis code to use. Venous angioplasty is an approved, covered procedured. I still have to pay what my insurance company didn’t pay, but it’s much less than what I would have had to pay without the insurance.

  2. Michelle 21 March, 2011 on 1:06 PM Reply

    After MS Aqua Therapy, the ladies and I note that we spend more time changing into our dry clothes than we do in the pool. Luckily, we all laugh about it…

Leave a Reply

Your email address will not be published.

To get the latest update of our works

>> <<