The CCSVI Option

CCSVI

I remember years ago when I was first diagnosed my neurologist confidently told me we’d probably see a cure in my lifetime. Now after thirteen years, I’m beginning to doubt him.

That’s the main reason I’m consistently looking for different options. I have always been told and believed that multiple sclerosis was a neurological disease. Well, there has been increasing talk that it’s in fact a vascular problem. I’m not going to pretend to be well versed in this, so I’ve pulled the following from The CCSVI Alliance website.

“CCSVI stands for “Chronic Cerebrospinal Venous Insufficiency,” a condition where people have obstructed blood flow in the veins that drain the central nervous system (the brain and spinal cord). Research indicates that CCSVI is significantly correlated with multiple sclerosis.

As a result of these venous abnormalities, the blood flow rate through the central nervous system back toward the heart may become slowed, and blood may reflux back toward the brain and spine. People with CCSVI have one or more blockages of the veins that drain blood from the central nervous system.”

The doctor who came up with this believes that by clearing the obstructions symptoms will be alleviated. This is similar to procedures commonly done in the heart.

Please understand this is an extremely simplified explanation I’m offering here. That’s exactly why I attended a free Doctors’ Roundtable: Exploring CCSVI & CSF in Neurological Disease this past week in New Orleans. It was hosted by The CCSVI Alliance. I was hoping that the event would provide a clear idea of what to do, but I must admit that I am as confused as ever.

I would love to hear what you guys think about CCSVI.

ccsvi info graphic

About Nicole Lemelle

My name is Nicole Lemelle. I am a writer, activist and a person living with Multiple Sclerosis. I created My New Normals to educate those who do not understand MS, reassure people with similar plights and inspire everyone to seize command of their lives.